Below are several findings from ACR’s Lupus Initiative projects that have impacted more than 7,400 lupus patients and health care providers and for which KDHRC has been an evaluation partner.
- More than 1,800 African American women and Latinas ages 18-25 attended education sessions and events as part of the Playbook Project, an initiative to increase awareness and knowledge of lupus signs and symptoms. Outcome evaluations showed increases in lupus knowledge as a perceived benefit of engagement and exposure to the Playbook.
- More than 500 non-rheumatology providers attended rheumatologist-led education sessions as part of the Small Group Project, which aimed to build relationships among healthcare providers while raising awareness of lupus, specifically in areas where rheumatology care is limited or unavailable. Outcome evaluations showed a perceived increase in lupus awareness and knowledge.
- 120 providers completed an evaluation of the Lupus Nephritis Self-Management Project (LNSM), which included digital resources for people living with lupus as well as rheumatology and nephrology providers who may be in need of additional information for patients. These evaluations showed that rheumatology and nephrology providers perceived the education materials to be useful, usable, and effective.