Lupus is an autoimmune disorder that causes inflammation and affects the skin, joints, and multiple organ systems in the body. There is no cure for lupus. However, adequate diagnosis and treatment improve health outcomes and quality of life.
The disease disproportionately affects ethnic minority women, including Latinas. Research suggests Latinas may lack awareness about lupus and face cultural and structural barriers to health care access.
KDHRC designed Latinas con Lupus, Promotoras con Información (LLPI) as a culturally tailored, online professional development course for promotoras de salud (community health workers). The goal of the program is to provide promotoras with the knowledge and skills to conduct outreach to Latinas with diagnosed or suspected lupus.
KDHRC conducted an online feasibility evaluation of the LLPI prototype with promotoras de salud across the United States. Promotoras exposed to the prototype demonstrated positive changes across all knowledge, attitudes, self-efficacy, and intentions related to lupus and conducting outreach in their communities. The findings suggest that the LLPI modules successfully prepared promotoras to educate and support Latinas around lupus topics.
“The information in the program is clear and precise. I feel comfortable sharing this with my community.”
“It was very helpful and useful information as you do not hear much about lupus in our area.”
“The program provided me with great information that I would have never known if I hadn’t participated in this study.”
“The modules are well designed. The information is clear and easy-to-understand I feel better prepared to tell others about lupus.”
In Fall 2019, KDHRC will launch the full program including a website from which promotoras can access the professional development course, related handouts and worksheets, videos, and interactive features.
KDHRC will conduct a rigorous outcome evaluation of the full program starting in Spring 2019. We will publish findings from the outcome evaluation in research briefs and peer-reviewed journals.